Prayers Please For My 3 Year Old!(now4)

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  #51  
Old 01-25-2013, 12:34 PM

RE: Prayers please for my 3 year old!(now4)

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Thank You for the Update! It is always good to hear how things have progressed.

Can I ask an uneducated question? What is 'the medical card' and why does it stop your poor baby from getting the testing he needs?


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  #52  
Old 01-25-2013, 12:38 PM

RE: Prayers please for my 3 year old!(now4)

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Will keep your Son, you and your family in my prayers. I sure hope a diagnosis is figured out quickly. HUGS
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  #53  
Old 01-25-2013, 12:56 PM

RE: Prayers please for my 3 year old!(now4)

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Originally Posted by MommaOf2Many View Post
Thank You for the Update! It is always good to hear how things have progressed.

Can I ask an uneducated question? What is 'the medical card' and why does it stop your poor baby from getting the testing he needs?


I debated on if I should post or not- but like I said, I have googled many things, read through an entire thread only to find out that no one ever updated and it drives me crazy! I know at least two people who have googled and found my thread here because their child was going through the same thing.
A medical card is state paid health insurance. Lovely state of Illinois doesn't pay their bills so my child has to suffer Hubby got full time employment recently, but what they want for insurance would leave us with basically no income leftover for bills.
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  #54  
Old 01-25-2013, 01:11 PM

RE: Prayers please for my 3 year old!(now4)

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Marcie, my thoughts and prayers for you and your son. I hope the new hospital takes him and you can finally get a diagnosis for his illness. Please keep us updated on his progress.
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Old 01-25-2013, 01:24 PM

RE: Prayers please for my 3 year old!(now4)

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Originally Posted by arupe001 View Post
Hi, I am reading through your posts and you and your family is in my prayers. While reading, it made me think of a medical problem a friend of mine had with her child and family. They had been sick with vomiting and diaherra for over a year. They did many tests and could never figure out what was wrong. Well it turns out, they had worms! I know that sounds drastic, but keep in mind that this is an extremely clean, health-nut, educated woman. They have no idea how the family contracted worms, but that was the cause. After they were treated, all the symptoms stopped. I hope you get some answers and your baby feels better soon!
Oh wow! They have checked for that though
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Old 01-25-2013, 02:07 PM

RE: Prayers please for my 3 year old!(now4)

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Marcie, I have thought of you often and hoped no news was good news. I'm so sorry it isn't the case. Your family is in my thoughts, I really, really hope you find answers soon and your son gets better.
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  #57  
Old 01-25-2013, 02:23 PM

RE: Prayers please for my 3 year old!(now4)

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I just happened to see this and I looked only because my son went through a similar journey from about 6mo of age until 14mo when he received a diagnosis.

Has anyone suggested an MRI to you yet? My son was hospitalized over and over and every GI issue in the book was exhausted and finally, God bless our GI guy... he said he thought our son may have a specific type of brain tumor. Sadly, he was correct, but my DS is now 4.5yo and still doing okay. I could PM you more information if it would help.

I hope I don't sound like I'm projecting doom/gloom, but rather helping suggest another place to look for an answer. I know from being in your shoes that while the answer we got was life-changing and heartbreaking, it was more difficult and frustrating to not know what was going on.

Please PM me if you'd like to talk more about this bc it's not something I really like laying out all over the place.
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  #58  
Old 01-25-2013, 03:03 PM

RE: Prayers please for my 3 year old!(now4)

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Quote:
Originally Posted by hyacinthgirl View Post
I just happened to see this and I looked only because my son went through a similar journey from about 6mo of age until 14mo when he received a diagnosis.

Has anyone suggested an MRI to you yet? My son was hospitalized over and over and every GI issue in the book was exhausted and finally, God bless our GI guy... he said he thought our son may have a specific type of brain tumor. Sadly, he was correct, but my DS is now 4.5yo and still doing okay. I could PM you more information if it would help.

I hope I don't sound like I'm projecting doom/gloom, but rather helping suggest another place to look for an answer. I know from being in your shoes that while the answer we got was life-changing and heartbreaking, it was more difficult and frustrating to not know what was going on.

Please PM me if you'd like to talk more about this bc it's not something I really like laying out all over the place.
Please PM me. All along this has been my fear but dr must not think so because an mri has never been done. (Or cat scan)
Cyclic vomiting syndrome is said to be a disorder of exclusion meaning everything has been excluded. The only tests that have been done is blood panel, stool test, upper gi, I think that's it
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  #59  
Old 01-25-2013, 04:19 PM

RE: Prayers please for my 3 year old!(now4)

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prayers for all of you
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Old 01-25-2013, 05:50 PM

RE: Prayers please for my 3 year old!(now4)

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Praying you find an answer soon....it is so hard watching your child being sick and not know what to do to help him....Please keep us informed....
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Old 01-26-2013, 07:26 PM

RE: Prayers please for my 3 year old!(now4)

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I debated on if I should post or not- but like I said, I have googled many things, read through an entire thread only to find out that no one ever updated and it drives me crazy! I know at least two people who have googled and found my thread here because their child was going through the same thing.
A medical card is state paid health insurance. Lovely state of Illinois doesn't pay their bills so my child has to suffer Hubby got full time employment recently, but what they want for insurance would leave us with basically no income leftover for bills.
Ahhhhhh - ok, I got it. That's crazy though! My DH lost his job also and after realizing it was taking longer than I expected for him to find a job, I finally broke down and applied for help. So as of Jan 1st, myself and the girls have State Medical also. I surely hope this does not put a damper on which medical services we can receive. I guess I should start reading!
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  #62  
Old 01-28-2013, 07:24 AM

RE: Prayers please for my 3 year old!(now4)

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More prayers coming your way Marcie! Everyone at Church was asking about Cameron yesterday so I updated them with the info from your last msg. Hugs to you and your family as well.
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Old 01-28-2013, 07:57 AM

RE: Prayers please for my 3 year old!(now4)

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Thanks everyone, once my kids go to school today I am calling the dr.'s office back to see if they have heard from the hospital in Chicago.
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Old 01-28-2013, 08:24 AM

RE: Prayers please for my 3 year old!(now4)

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Aww poor thing. Prayers going up!! Hoping you hear good news from Chicago!
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Old 02-24-2013, 03:23 PM

RE: Prayers please for my 3 year old!(now4)

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After many many phone calls and trying to get all the right records sent to the right place we FINALLY got him an apt in Chicago. It is on March 5th! Prayers please- I will be heartbroken if I hear there is nothing we can do. Also, I have severe anxiety driving so prayers that my mom can get off work so she can take us! It will be close to a 3 hr drive!
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Old 02-24-2013, 03:46 PM

RE: Prayers please for my 3 year old!(now4)

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Sending prayers for your little one. I am also sending prayers that everything work out for your trip.
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Old 02-24-2013, 03:51 PM

RE: Prayers please for my 3 year old!(now4)

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Good luck!! I'm so glad you got in! I hope your mom can go but if not, I know your mommy strength will kick in and you will get him there safe and sound. Keep us updated!!!
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Old 02-24-2013, 04:51 PM

RE: Prayers please for my 3 year old!(now4)

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We will continue to keep you and your family (esp Cameron) in our personal and church prayers. God will see you thru this!
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Old 02-24-2013, 06:12 PM

RE: Prayers please for my 3 year old!(now4)

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Praying...and, please try to take care of yourself....please keep us informed...God is in control!!!
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Old 02-27-2013, 06:22 PM

RE: Prayers please for my 3 year old!(now4)

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Old 02-27-2013, 07:36 PM

RE: Prayers please for my 3 year old!(now4)

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Old 03-18-2013, 11:44 PM

RE: Prayers please for my 3 year old!(now4)

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Quick update: had to reschedule his apt due to a bad snowstorm. His new apt is this Friday. He is in the middle of an episode now since Friday. .
Now two of my other kids came down with the flu
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Old 03-19-2013, 06:05 AM

RE: Prayers please for my 3 year old!(now4)

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I hate to say this but the more symptoms the doc sees, the better. Good luck!!!!
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Old 03-19-2013, 06:07 AM

RE: Prayers please for my 3 year old!(now4)

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Originally Posted by Quazel View Post
I hate to say this but the more symptoms the doc sees, the better. Good luck!!!!
I had the same thoughts! Obviously I don't want him sick but I think he should be seen WHILE he is sick
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Old 03-19-2013, 06:39 AM

RE: Prayers please for my 3 year old!(now4)

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Wow, so sorry you are going through all of this. Just read through this thread with the updates, Definitely keeping you in my prayers.
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